Welcome to Our Website!
The
Bloom Syndrome Foundation is established to fund research aiming at
the development of a therapy for Bloom's syndrome and the prevention
of its complications, primarily the significant risk of developing cancers
at early ages. Blooms syndrome is a very rare inherited genetic disorder.
Because it is so seldom found, research labs and pharmaceutical corporations
are not interested to investigate this syndrome or the complications
of it. A patient with this disorder however, doesnt care about this
seldomness. At the beginning of 2006 a lab was set up at the Ohio University
Comprehensive Cancer Center (US) to do research on Bloom syndrome. This
research is initiated and funded by the Bloom's Syndrome Foundation.
The first steps on the research path have been made. This is very encouraging,
but these are only the first steps. In behalf of all the patients of
Bloom syndrome, new steps have to be made. To support this research,
The Bloom Syndrome Foundation wants to collect funds. For this, we need
your help. You can make a difference. Your donation can make miracles
happen, as:
... A healthy child has many wishes, a sick child only one...
The Bloom Syndrome Foundation has the support of the 'Advisory Board' which include:
Dr. C.M.R. Weemaes
UMC St. Radboud Kinderimmunologie en Infectieziekten
Postbus 9101 6500 HB Nijmegen
The NetherlandsProf. Dr.med. E. Passarge Emeritus
Direktor Institut fr Humangenetik Universitatsklinikum
Essen Hufelandstrasse 55 45122 Essen
Germany
BSF Scientific Research
For current scientific grant research you can also look at : bloomssyndrome.org
